1/19
POTS
stands for
postural
orthostatic
tachycardia
syndrome

Donation total as of 3/19/20 11:00 a.m.

Important Update

March 11, 2020

Dear Dysautonomia International community,

Dysautonomia International hosts over 250 events per year on three continents. The health and safety of our community members, volunteers, and staff are our top priority. Out of an abundance of caution, after reviewing ongoing CDC and WHO reports on coronavirus (COVID-19) and consulting with our Medical Advisory Board, Dysautonomia International has made the difficult decision to postpone the Boston POTS Walk until the fall. We will announce the new date on this page and our social media channels as soon as it's confirmed.

We will email all guests who have already registered for the race to offer them a full refund, the option to maintain their registration until the fall date is announced, or the option to count their race registration as a donation if they can't attend in person. If you have any questions about your registration, you can contact us at 631-202-1720 or events@dysautonomiainternational.org.

We will use this extra time to continue fundraising... maybe we can make this the most successful Boston POTS Walk fundraiser to date. If you would like to do so, you can continue to fundraise for the race even if you can't attend the race in person this fall. 

We encourage the dysautonomia community to be informed on the best practices to prevent the spread of COVID-19 and what to do if you think you may be sick. The CDC's COVID-19 website is a helpful resource that is updated frequently with the latest information.

Thank you for your patience and understanding as we adjust our operations to address this evolving situation.

Sincerely,

Jackie Rutter Gully
Chair, Boston POTS Walk
Dysautonomia International Board Member

REGISTRATION is now open. The registration fee is $35 per person.  Registration includes a free t-shirt (if registered by 4/23/20) and goody bag for the first 500 registrants along with post-race refreshments and entertainment.  We welcome runners, walkers, wheelchairs and those that would like to push strollers. Young children (8 and under) are encouraged to participate with a registered adult and will receive a medal (no t-shirt for unregistered children).  Prizes will be presented to the top runner in five age groups.  We hope everyone will stay for the wellness fair, awards presentations, food and refreshments, along with live entertainment from Umami. 

 Please register early.

.

To enhance the community spirit of the POTS Walk &5K  we would like to encourage participants and donors to create fundraising teams. We encourage you to bring your family and friends  - bring a tent, make t-shirts - and make a party out of it.

We welcome teams of any size with no fundraising minimum. For those teams able to raise $2000 or more, we are offering incentives to enhance your team experience.

 Learn how to create a team.

Team Incentives: 

  • For teams raising $2000 or more, we will provide a Team Tent.

  • For teams raising over $3000 or more, we will also provide a custom Team Banner (which is yours to keep).

  • And for teams raising $5000  or more, we will also provide 20 custom-printed Team T-Shirts.

We hope teams will stay for the post-race festivities - music, food, awards and wellness!

Live 

entertainment

by Umami.

10 - 1pm.

 

Building
a community
of support and 
understanding,
one POTS Walk 
at a time.
POTS
affects 1 to 3
Million Americans

POTS is estimated to effect approximately 1-3 million

Americans, mostly young women. Despite its prevalence,

most people have never heard of POTS.  Many doctors are unfamiliar with POTS, which makes getting a diagnosis

and proper treatment extremely difficult.  There is little 

that doctors understand about POTS

and a tragic lack of funding

for ongoing research.

 

 Proceeds benefit 

Dysautonomia International

This is a

5K run, walk, or roll

to raise research funds for and awareness

of postural orthostatic tachycardia syndrome (POTS), 

a form of dysautonomia. It takes place along

the scenic Mystic River in Medford, MA.

The 2020 Boston

POTS Walk & 5K is sanctioned by the USATF

You don't need to participate in the race to donate and/or join a Fundraising Team. You can go straight to our fundraising site to donate. The POTS Walk & 5K benefits Dysautonomia International, an organization devoted to funding POTS research. Proceeds will benefit the POTS Research Fund. 

We are looking for some wonderful sponsors for the 2020 Boston POTS Walk & 5K. Information about sponsorship can be found here. In addition to the sponsorship levels, in-kind gifts are also encouraged and appreciated.  If your company or a company you know is interested in becoming a sponsor and requires more information, please email us at  info@POTSwalk.org.

This year we are holding a WELLNESS FAIR during the POTS Walk and 5K. We welcome companies and individuals that have services of interest to patients and participants, such as yoga, massage, bodywork, reiki, and nutritional counseling, to be part of this wonderful day. To be eligible, a service must be provided at the event, free of charge. Dysautonomia International can provide support prior to and during the event with prior notice. There is no fee.

For more information, please email us at  info@POTSwalk.org.

If you know of an individual or company that might like to be involved, please share the Wellness Fair information or contact Dysautonomia International.

About

Dysautonomia International 

Dysautonomia International is a 501(c)(3) non-profit that seeks to improve the lives of over 70 million individuals around the world living with disorders of the autonomic nervous system. The organization offers patient and physician education resources, community outreach, legislative advocacy and patient support for all autonomic disorders. Our innovative research program focuses on postural orthostatic tachycardia syndrome (POTS).

Since its launch in 2012, Dysautonomia International has raised over $5M for research, education and support. The organization has partnered with autonomic experts at Mayo Clinic, Harvard University, Vanderbilt University, University of Texas Southwestern and many other institutions to advance the pace of research and provide educational programs for physicians and patients alike.

Dysautonomia International created the POTS Research Fund in December 2013 to provide a dedicated stream of funding for POTS research. In the past four years, we have issued nearly $1.7 million in POTS research grants. 

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Thank you for your interest in supporting those suffering from POTSIf you need more information to walk, run, donate, or attend this yearly event, please email us at:​   info@POTSwalk.org

The Boston POTS Walk & 5K benefits Dysautonomia International which is a 501(c)(3) non-profit founded in 2012 by patients, caregivers, physicians and researchers dedicated to assisting people living with various forms of dysautonomia.

We look forward to seeing you at the next walk. 

May 2, 2020

Medford, MA

11:00 am

For more information on POTS & dysautonomia, subscribe to Dysautonomia International where you'll find updates on the latest research and events, along with resources for patients, families, schools and medical professionals.