This is a 5K run, walk, or roll
to raise research funds for and awareness
of postural orthostatic tachycardia syndrome (POTS),
a form of dysautonomia. It takes place along
the scenic Mystic River in Medford, MA.
POTS is estimated to effect approximately 1-3 million Americans, mostly young women. Despite its prevalence, most people have never heard of POTS. Many doctors are unfamiliar with POTS, which makes getting a diagnosis and proper treatment extremely difficult.
There is little that doctors understand
about POTS and a tragic lack of funding
for ongoing research.
REGISTRATION will open on January 1, 2020. The registration fee is $30 per person. Registration includes a free t-shirt (if registered by 10/10) and goody bag for the first 500 registrants along with post race refreshments and entertainment. We welcome runners, walkers, wheelchairs and those that would like to push strollers. Young children (8 and under) are encouraged to participate with a registered adult and will receive a medal (no t-shirt for unregistered children). Prizes will be presented to the top runner in five age groups. We hope everyone will stay for the wellness fair, awards presentations, food and refreshments, along with live entertainment.
To enhance the community spirit of the POTS Walk &5K we would like to encourage participants and donors to create fundraising teams. We encourage you to bring your family and friends - bring a tent, make t-shirts - and make a party out of it.
We welcome teams of any size with no fundraising minimum. For those teams able to raise $2000 or more, we are offering incentives to enhance your team experience.
For teams raising $2000* or more, we will provide a Team Tent.
For teams raising over $3000* or more, we will also provide a custom Team Banner (which is yours to keep).
And for teams raising $5000* or more, we will also provide 20 custom-printed Team T-Shirts.
We hope teams will stick around for the post-race festivities - music, food, awards and wellness!
You don't need to participate in the race to donate and/or join a Fundraising Team. You can go straight to our fundraising site to donate. The POTS Walk & 5K benefits Dysautonomia International, an organization devoted to funding POTS research. Proceeds will benefit the POTS Research Fund.
We are looking for some wonderful sponsors for the 2020 Boston POTS Walk & 5K. Information about sponsorship can be found here. In addition to the sponsorship levels, in-kind gifts are also encouraged and appreciated. If your company or a company you know is interested in becoming a sponsor and requires more information, please email us at info@POTSwalk.org.
This year we are holding a WELLNESS FAIR during the POTS Walk and 5K. We welcome companies and individuals that have services of interest to patients and participants, such as yoga, massage, bodywork, reiki, and nutritional counseling, to be part of this wonderful day. To be eligible, a service must be provided at the event, free of charge. Dysautonomia International can provide support prior to and during the event with prior notice. There is no fee.
For more information, please email us at info@POTSwalk.org.
If you know of an individual or company that might like to be involved, please share the Wellness Fair information or contact Dysautonomia International.
Dysautonomia International is a 501(c)(3) non-profit that seeks to improve the lives of over 70 million individuals around the world living with disorders of the autonomic nervous system. The organization offers patient and physician education resources, community outreach, legislative advocacy and patient support for all autonomic disorders. Our innovative research program focuses on postural orthostatic tachycardia syndrome (POTS).
Since its launch in 2012, Dysautonomia International has raised over $4M for research, education and support. The organization has partnered with autonomic experts at Mayo Clinic, Harvard University, Vanderbilt University, University of Texas Southwestern and many other institutions to advance the pace of research and provide educational programs for physicians and patients alike.
Dysautonomia International created the POTS Research Fund in December 2013 to provide a dedicated stream of funding for POTS research. In the past four years, we have issued nearly $1.5 million in POTS research grants.