What is POTS?

POTS stands for postural orthostatic tachycardia syndrome, which is a disorder of the autonomic nervous system or dysautonomia. The autonomic nervous system is responsible for regulating many systems in our bodies, including heart rate and blood pressure. When a POTS patient stands upright their body is unable to regulate heart rate and blood pressure properly. This leads to an abnormal increase in heart rate. Because the autonomic nervous system is responsible for controlling many bodily functions, POTS brings along a whole host of other symptoms including, nausea, fatigue, sweating, lightheadedness, tremors etc.

POTS is estimated to affect approximately 1-3 million Americans, mostly young women. Despite its prevalence, most people have never heard of POTS.  Even most doctors are unfamiliar with POTS, which makes getting a diagnosis and proper treatment extremely difficult. There is also a tragic lack of funding for ongoing research.


There is no standard treatment or cure for POTS. Patients are advised to drink a lot of water, consume a lot of salt, and exercise as much as they can tolerate. Medications are prescribed to alleviate symptoms as much as possible. 

Please consider printing out Dysautonomia International's 10 Facts About POTS to share with friends, family and medical professionals.

"These virtual events are an awesome opportunity to raise funds for research. You can also now win a physician education course for POTS in your area! I can't wait to get involved!"
- Ashley Rippentrop, Columbia, MO

About Dysautonomia International & the POTS Research Fund

 

POTS is estimated to effect approximately 1-3 million Americans, mostly young women. Despite its prevalence, most people have never heard of POTS. Many doctors are unfamiliar with POTS, which makes getting a diagnosis and proper treatment extremely difficult. There is little that doctors understand about POTS and a tragic lack of funding for ongoing research.

 

All funds raised during the 2020 POTS Walk #STEPtember Challenge will support Dysautonomia International's POTS Research Fund, with grants going to fund the work of Early Career Investigators to promote interest in POTS by the next generation of researchers. Dysautonomia International created the POTS Research Fund in December 2013 to provide a dedicated stream of funding for POTS research. In the past five years, we have issued nearly $1.8 million in POTS research grants. Dysautonomia International is the largest non-governmental source of POTS research funding in the world.

Dysautonomia International is a 501(c)(3) non-profit that seeks to improve the lives of over 70 million individuals around the world living with disorders of the autonomic nervous system. The organization offers patient and physician education resources, community outreach, legislative advocacy and patient support for all autonomic disorders. 

Working together, we can #CurePOTS!

For more information on the 2020 POTS Walk #STEPtember Challenge, email us at:​ events@dysautonomiainternational.org

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