Join patients, families, and friends from around the world through this virtual event that raises postural orthostatic tachycardia syndrome (POTS) awareness and research funds, along with fostering fun and friendly competition.
Here's the CHALLENGE! 
From Sept 1st to Sept 30th teams will compete for amazing prizes. Raise the most funds to win a day of POTS educational programming in your area, create the biggest team (the most registrants) to win a virtual meet n'greet with Dr. Blair Grubb, raise $1,000 to win a Dysautonomia International 2021 Conference ticket, and raise $100 to win Limited Edition POTS awareness shoelaces!

Limited Edition #CurePOTS

event t-shirt $30

Registration for this

event is now closed. 

Thank you to everyone that

supported this wonderful

and important fundraiser.

We look forward to seeing

you next year.

Proceeds will fund 
 Early Career Investigators POTS Research Grants
The goal of this event is to raise as much awareness about POTS and as much funding for POTS research as possible. While walking is not required to participate in this virtual event, we encourage everyone to set a personal goal for how many steps or miles you want to walk during the POTS Walk #STEPtember Challenge, whether you're just trying to walk around your house, or you're aiming to walk several miles a day. One mile is about 2,000 steps.
Announce your goal and share your progress on social media throughout the month with photos and stories, along with a link to your fundraising page, to encourage your friends and family to support you. Wheelchair rollers welcome too! If you tag Dysautonomia International in your posts, we'll share some of the posts on our social media pages.

Please go to the PRIZES page for detailed information .

#STEPtember Challenges

 Challenge #1 - Most FUNDS raised by a TEAM 

Physician Education and Patient Education Event held in your region.

 Challenge #2 - Most REGISTRANTS on a TEAM 

 Challenge #3 - Raise $1,000 or more 

Raise $1,000 or more on your individual fundraising page to receive a complimentary ticket to the 2021 Dysautonomia International conference. (Note: Due to the decision to offer the 2020 conference free-of-charge, we have changed this prize.)

Meet-and-Greet with Dr. Blair Grubb, a Dysautonomia International Medical Advisory Board (MAB) member. This is a private, online Q&A for team members and their invited guests

 Challenge #4 - Raise $100 or more 

ALL individual fundraisers that raise $100 or more will receive a pair of Limited Edition POTS awareness shoelaces.

If you have any questions, please reach out to Kirsten Slowey at

Sponsorship Opportunities

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Go to the sponsorship page to become a POTS patient's hero, and to learn how your generous donation might be used to fund research that gets us one step closer to a cure. Together we can #CurePOTS!

"We’re really hoping you’ll join us for the #STEPtember Challenge. Every small step - especially taken together - helps members of this community in innumerable ways. It’s a great feeling, so please sign up today."
- Jackie Rutter Gully,  Dysautonomia International Board of Directors & Event Chair 

Photos from previous POTS Walks

About Dysautonomia International & the POTS Research Fund


POTS is estimated to effect approximately 1-3 million Americans, mostly young women. Despite its prevalence, most people have never heard of POTS. Many doctors are unfamiliar with POTS, which makes getting a diagnosis and proper treatment extremely difficult. There is little that doctors understand about POTS and a tragic lack of funding for ongoing research.


All funds raised during the 2020 POTS Walk #STEPtember Challenge will support Dysautonomia International's POTS Research Fund, with grants going to fund the work of Early Career Investigators to promote interest in POTS by the next generation of researchers. Dysautonomia International created the POTS Research Fund in December 2013 to provide a dedicated stream of funding for POTS research. In the past five years, we have issued nearly $1.8 million in POTS research grants. Dysautonomia International is the largest non-governmental source of POTS research funding in the world.

Dysautonomia International is a 501(c)(3) non-profit that seeks to improve the lives of over 70 million individuals around the world living with disorders of the autonomic nervous system. The organization offers patient and physician education resources, community outreach, legislative advocacy and patient support for all autonomic disorders. 

Working together, we can #CurePOTS!

For more information on the 2020 POTS Walk #STEPtember Challenge, email us at:​

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